Background & Aims
The Consortium to Research Individual, Interpersonal and Social Influences in Pain (CRIISP) is a United Kingdom (UK) collaboration of eight universities investigating how thoughts, feelings and social factors, can affect chronic pain. This work sits within the UK Research and Innovation and Versus Arthritis funded Advanced Pain Discovery Platform (APDP). Five work packages (WPs) within CRIISP investigate a single set of topics to identify which psychosocial factors influence the development, maintenance and outcome of chronic pain. A sixth overarching WP oversees integration and translation of the CRIISP research within CRIISP and more widely. In addition, a public involvement work package (PI WP), co-led by people with lived experience, ensures the views of people with experience of chronic pain are integral throughout the CRIISP research. The PI WP has established a network of public contributors to work in equal partnership with researchers across all workstreams.
Methods
Adults with chronic pain, or caring for someone with chronic pain, were invited to apply for public contributor roles via a targeted UK advertising campaign which commenced in March 2022. An inclusive and wide-reaching recruitment strategy promoted diversity including gender, age, ethnicity, and prior experience of public involvement work. Interested individuals were directed to a bespoke website with a ‘Find Out More’ video and role description. Public contributors were informed they would be paid for meeting attendance and pre and post meeting activity, except where involvement on a voluntary basis is requested by the public contributor.
Results
28 public contributors applied. Applications were reviewed by members of the PI WP and screened to ensure public contributors were from a range of backgrounds and experience. All public contributors received general training about the CRIISP plus WP induction training sessions delivered as a video or ‘live’ via MS Teams. Allocation to WPs was based on interests and experience. Two people from each of the five core WPs took on the additional role of co-Chair with Chairing skills training provided. The ten co-Chairs comprised the membership of the overarching Integration & Translation WP. Recruitment continues when required due to the natural attrition of public contributors, expected in a long-term project. Governance documentation was produced by the PI WP and included: data management plans, PI guidelines for researchers, and public contributor wellbeing safe practice guidance. The perspectives, leadership and contribution of the public contributors were integral to all processes.
Conclusions
The PI network has successfully worked in collaboration and equal partnership with the CRIISP research teams during Year 1 of the project, to ensure the voices of people with chronic pain are heard in all aspects of CRIISP. As we progress into Year 2, public contributors are extending their involvement activities to include contributing to online blogs, contributing to the preparation of manuscripts, and presenting and Chairing at national and international conferences. Working in partnership with people with lived experience of pain, will fully embed their contribution across all workstreams, and help to ensure CRIISP outputs are relevant to people with chronic pain.
References
No references
Presenting Author
Sharon Grieve
Poster Authors
Sharon Grieve
DPhil
University of the West of England, Bristol, UK
Lead Author
Ian Taverner
University of Bath, Bath, UK
Lead Author
Lisa Austin PhD
University of Bath, Bath, UK
Lead Author
Carolyn Chew-Graham MD
School of Medicine, Keele University, Newcastle, Staffs, UK
Lead Author
Rosie Harrison PhD
School of Medicine, Keele University, Newcastle, Staffs, UK
Lead Author
Adele Higginbottom
School of Medicine, Keele University, Newcastle, Staffs, UK
Lead Author
Candida McCabe
PhD
University of the West of England
Lead Author
Ellen Readman BSc(Hons)
University of the West of England, Bristol UK
Lead Author
Noureen Shivji PhD
School of Medicine, Keele University, Newcastle, Staffs, UK
Lead Author
Edmund Keogh
PhD
University of Bath
Lead Author
Topics
- Patient Engagement and Co-Creation in Research and Education