Background & Aims
Pediatric pain, constantly neglected in health services, must be assessed holistically and longitudinally. Therefore, in order to value the child’s feelings and the way in which pain impacts their life, new strategies must be created so that this discomfort is evaluated effectively, valuing the individual as unique, subjective and complex. Nowadays, it is understood that daily and longitudinal recording of pain characteristics is essential to obtain more accurate and reliable information for better evaluation. Added to this, it is worth highlighting that mobile technologies, such as smartphones, have become increasingly widespread among the world population, including in Brazil, where, in 2018, internet access was available in around 79.1% of households. The aim is develop an application whose main functionality is the longitudinal and self-reported assessment of pain in children through an electronic diary.
Methods
This is a multicentric and interdisciplinary project. In the first phase of the project, presented in this summary, a multivariate methodology study was carried out, including a literary review, to create a pain diary.
A mobile application called APDor (Pediatric Pain Agenda) was developed, whose main functionality is to be an electronic pain diary: the patient enters daily information and health professionals can access this information.
APDor has three sections: the first is aimed at user identification; the second asks general routine issues that influence pain and quality of life, such as activities, food and sleep; and the third is focused on pain investigation, based on the main pain self-assessment scales already validated for the age group in question and clinically used, such as the visual analogue scale (VAS), the faces scale, the color scale and the body schema. There will also be space to write freely, if the child wants to add anything else.
Results
APDor was developed, that is, an application to assist in the pain diary in pediatrics. “Game” strategies were used, so that the child could feel represented. A digital tool was developed that: 1. in principle, considered the individual rights of each child in recognizing their pain and valuing their report about it to evaluate their clinical condition; 2. is based on previously consolidated pain assessment instruments so that valid, useful and reliable data can be collected for the characterization of pain and its standardization; 3. It is a dynamic and permanent tool, enabling longitudinal monitoring of the patient to check their progress and the effects of the chosen therapy.
Conclusions
With the creation of APDor, which aimed to evaluate pediatric pain in a careful and efficient way in the search for an effective diagnosis and treatment justified by the individual rights of each child based on guaranteeing their health and well-being through health promotion, phase 2 of this project will be carried out, moving forward with a pilot project with the children themselves.
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SOCIEDADE BRASILEIRA DE PEDIATRIA. Documento científico: Cuidados
Paliativos Pediátricos: O que são e qual sua importância? Cuidando da criança em
todos os momentos. n. 1, nov. 2021.
Presenting Author
Esther Angelica Luiz Ferreira
Poster Authors
Esther Angelica Luiz Ferreira
PhD
Federal University of São Carlos
Lead Author
João Paulo Borges Bispo
Federal University of São Carlos - UFSCar
Lead Author
Gustavo Pironi
Aeronautics Technological Institute - ITA
Lead Author
Priscila Correia Fernandes
Msc
Aeronautics Technological Institute - ITA
Lead Author
Thainara Pereira da Silva
Federal University of São Carlos - UFSCar
Lead Author
Isabela Pereira
Federal University of São Carlos - UFSCar
Lead Author
Maycon Rodrigo Sarracini
engineer
Central Paulista University Center - Unicep
Lead Author
Cristina Ortiz Sobrinho Valete
PhD
Federal University of São Carlos
Lead Author
Rodrigo Reiff
MD
Central Paulista University Center - Unicep
Lead Author
Maria Sagrario Gómez-Cantarino
PhD
University of Castilla La Mancha
Lead Author
Topics
- Pain in Special Populations: Infants/Children