Amplifying patient voices around diversity, equity, and inclusion in pediatric pain treatment

The vast majority of youth who reach tertiary-level chronic pain clinics are demographically homogenous (i.e., 80% white/Caucasian, predominantly mid to upper socio-economic status [SES]), yet our understanding of why more marginalized groups (e.g., racial/ethnic minorities) do not present for tertiary pain care remains limited. In a broader context, it is known that pain has been historically undertreated in these communities. For example, evidence has consistently shown that marginalized groups are less likely to seek out and access care when needed, which is driven by factors relating to racism, peer influences, SES, etc. Marginalized groups also frequently report medical mistrust (i.e., lack of trust in one’s physician or treatment). In these contexts, aims of the current proposal include identifying avenues for practice change and inclusivity through focus groups with racially/ethnically diverse pediatric patients and their families who are presenting for specialty pain care.