Background & Aims
Chronic pain is one of the main juvenile fibromyalgia symptoms (JFM), which has a negative impact on functionality with repercussions in adulthood. However, little appreciation can compromise the treatment, and favor greater severity of condition. There are few studies that subjectively explore pain experiences of children and adolescents with chronic pain in general. Furthermore, to our knowledge, there is no specific study that explores pain experiences, impact and management strategies through qualitative data in children and adolescents with JFM. Due to its complex nature, as it seems to be the most severe manifestation of chronic generalized musculoskeletal pain and due to its high long-term impact, the present study aims to explore pain experiences, perceptions and beliefs of children and adolescents with JFM.
Methods
This qualitative study was conducted based on the criteria and recommendations of the Consolidated Criteria for Reporting Qualitative Research (COREQ) e Standards for Reporting Qualitative Research (SRQR). The interviews were carried out by a physiotherapist following a structured script with 12 items via web conference lasting 30-40 minutes, with the participation of the interviewer, volunteer and observer. Twelve children and adolescents with JMF, aging between 8 and 18 years, were interviewed. To increase the reliability of the interview, we perform consultancy analysis, pilot testing and audit trail. Data analysis and coding were carried out using the MAXQDA® software version 2022, containing the data and investigator triangulation method.
Results
Five categories emerged: conception and knowledge of pain; pain characteristics; psychological aspects; impact of pain on functionality; coping with pain and ten subcategories. In the first category, it is observed that there is lack of knowledge and uncertainty about cause of pain. The second category shows that children experience intense, chronic and unpredictable pain. The third category emphasizes that there is impairment of psychological aspects involving emotion and cognition. The fourth category highlights limitation of daily activities, sports, school performance and relationships with friends. The fifth category portrays mechanisms to deal with pain, and includes physical and psychological strategies, rest, family and social support.
Conclusions
It is concluded that pain is poorly understood by participants, constant, of severe intensity and associated with psychological comorbidities cause severe functional limitations. Despite coping strategies, the time of living with pain without treatment may reflect on severity of symptoms.
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Presenting Author
Josimari DeSantana
Poster Authors
Josimari DeSantana
PT, PhD
Federal University of Sergipe
Lead Author
Monique Santos
Federal University of Sergipe
Lead Author
Riziane Mota
Federal University of Sergipe
Lead Author
Thiago S.S. Abner
Federal University of Sergipe
Lead Author
Eline S. Cunha
Federal University of Sergipe
Lead Author
Akeline S. Almeida
Federal University of Sergipe
Lead Author
Tainã R.K. Florêncio
Federal University of Sergipe
Lead Author
Topics
- Pain in Special Populations: Adolescents